Public Health, Rehabilitation, Citizenship, Education:
Assistive Technology:
- Assistive Technology Industry Association (ATIA) "The ATIA is the premier organization for manufacturers, sellers and providers of assistive technology (AT)—products, equipment and systems that enhance learning, working and daily living for persons with disabilities. We are the global leader in education and research for the assistive technology industry.
- Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) "RESNA, the Rehabilitation Engineering and Assistive Technology Society of North America, is the premier professional organization dedicated to promoting the health and well-being of people with disabilities through increasing access to technology solutions. RESNA advances the field by offering certification, continuing education, and professional development; developing assistive technology standards; promoting research and public policy; and sponsoring forums for the exchange of information and ideas to meet the needs of our multidisciplinary constituency.
- American Speech-Language-Hearing Association (ASHA) "Making effective communication, a human right, accessible and achievable for all.
- Augmentative and Alternative Communication Institute (AACI) "We are a not-for-profit, charitable organization dedicated to the most effective communication for people who rely on augmentative and alternative communication (AAC).
- Augmentative Communication, Inc. (ACI) "A world of free and low-cost resources for people who rely on augmentative communication."
- Pacific Medical Training: Understanding communication disorders "Article:
- United States Society for Augmentative and Alternative Communication (USSAAC) "USSAAC is the United States Society for Augmentative and Alternative Communication, the national chapter of ISAAC, the International Society for Augmentative and Alternative Communication. At USSAAC, our members join forces to improve the services, resources and products used by children and adults who turn to AAC methods in order to communicate. We strive to enhance the communication effectiveness and, ultimately, the independence of persons desiring access to an alternative communication system. In fact, USSAAC is the only national association specifically designed to address the needs of persons who are either severely speech impaired or unable to speak. We are also dedicated to answering the needs of individuals who support the AAC community through therapy, special education or the creation and manufacturing of technology."
- University of Nebraska–Lincoln - Dept. of Special Ed. & Communication Disorders "Department of Special Education & Communication Disorders:
Our mission: to serve as the collective voice of the assistive technology industry to help ensure that the best products and services are delivered to persons with disabilities."
The organization's legal name is RESNA.
RESNA's goal is "To maximize the health and well being of people with disabilities through technology."
The purpose of RESNA is to contribute to the public welfare through scientific, literary, professional and educational activities by supporting the development,dissemination, and utilization of knowledge and practice of rehabilitation and assistive technology in order to achieve the highest quality of life for all citizens."
Augmentative and Alternative Communication (AAC):
What is AAC?
American Speech-Language-Hearing Association (ASHA.org):
"Augmentative and alternative communication (AAC) includes all forms of communication (other than oral speech) that are used to express thoughts, needs, wants, and ideas. We all use AAC when we make facial expressions or gestures, use symbols or pictures, or write.
People with severe speech or language problems rely on AAC to supplement existing speech or replace speech that is not functional. Special augmentative aids, such as picture and symbol communication boards and electronic devices, are available to help people express themselves. This may increase social interaction, school performance, and feelings of self-worth.
AAC users should not stop using speech if they are able to do so. The AAC aids and devices are used to enhance their communication."
The American Speech-Language-Hearing Association (ASHA) is the national professional, scientific, and credentialing association for 191,500 members and affiliates who are audiologists; speech-language pathologists; speech, language, and hearing scientists; audiology and speech-language pathology support personnel; and students."
The two most important values expressed by people who rely on AAC are:
1. saying exactly what they want to say
2. saying it as fast as they can
AAC services must honor these values of people who use AAC and their families. Achieving the goal of AAC (optimal communication & maximum potential) is best accomplished when the principles of evidence-based practice and performance measurement are used."
Understanding communication disorders A communication disorder is an individual's inability to process, send, receive, or comprehend concepts or follow graphic, verbal, and nonverbal symbols. Communication disorders can occur in the process of speech, language, or hearing and may vary from mild to severe ones. There may be one or a combination of communication disorders in an individual that have a number of causes. A communication disorder may create a disability or it may be a result of some other disabilities. About 10% of American children have one or more types of communication disorders."
An area of clinical practice that attempts to compensate either temporarily or permanently for the impairment and disability patterns of individuals with severe and expressive communication disorders."
Autism
- Autism Spectrum Disorder (information sent by Ms. Claire Hockey - Editorial Staff Pacific Medical Training) "Autism spectrum disorder (ASD) is a developmental disability resulting in communication, social, and behavioral difficulties. ASD impacts how a person perceives and socializes with others, resulting in communication and social interaction issues. Autism spectrum disorder may include limited or repeated types of behavior. However, the term “spectrum” in ASD means a wide range of symptoms and severity of the disorder.
Specific vital abilities like thinking, learning, and problem-solving of those with ASD can vary from gifted to severely affected. Some patients need a lot of support in their daily lives, while others may not need any.
Autism can have a serious impact on education and employment. In fact, 85% of college-educated people with autism are unemployed. The level of support provided by the national and local authorities, and societal attitudes are crucial factors in determining the quality of life of those with ASD."
Centers for Disease Control and Prevention (CDC-DHDS)
- Disability and Health "The Centers for Disease Control and Prevention (CDC) has been involved in disability and health activities since 1988. The mission of the CDC Disability and Health Branch is to promote the health and full participation in society by people with disabilities across the lifespan.
- Disability and Health Data System (DHDS) "This tool provides instant access to state-level health and demographic data about adults with disabilities."
Monitoring the Health of People With and Without Disabilities:
CDC monitors the health of people with and without disabilities to identify how health issues affect people in different ways and why some people are at higher risk for certain diseases and conditions. Studies have shown that people with disabilities are more likely to have poorer overall health, less access to adequate health care, and increased risk for preventable health problems. These data are important to help identify barriers to achieving good health, and to design prevention and health promotion programs aimed at reducing health disparities and improving the health of people with disabilities."
Department of Health and Human Services: National Institute on Aging (NIA)
- National Institute on Aging
- Caregiver Resources & Long-Term Care "Family caregivers play an important role in the lives of their loved ones. In-home assistance, community programs, or residential facilities enable you to stay active and accomplish everyday tasks. There are many resources available to help older adults continue to live in their homes and participate in their communities."
- Elder Justice "Millions of older Americans experience abuse, neglect, exploitation, or discrimination each year. Take steps to protect your physical, mental, and financial security."
- Healthy Aging "Adopting healthy habits and behaviors, staying involved in your community, using preventive services, managing health conditions, and understanding all your medications can contribute to a productive and meaningful life."
- Retirement Planning & Security "It's important to plan for retirement so that you can enjoy financial security later in life without the risk of outliving your assets."
- Elder Justice "Resources to support older adults and their caregivers can vary from state to state. See what is available to you."
Aging
"More than 10,000 people turn 65 every day in the United States, and people are living longer, healthier lives. Healthy lifestyles, planning for retirement, and knowing your options for health care and long-term care are more important than ever before."
Department of Health and Human Services: Physical Activity Guidelines
- Home of the Office of Disease Prevention and Health Promotion
Chapter 7: Additional Considerations for Some Adults
Physical Activity for People With Disabilities:
"The benefits of physical activity for people with disabilities have been studied in diverse groups. These groups include stroke victims, people with spinal cord injury, multiple sclerosis, Parkinson's disease, muscular dystrophy, cerebral palsy, traumatic brain injury, limb amputations, mental illness, intellectual disability, and dementia."
Department of Housing and Urban Development (HUD)
- Buying a Home "HUD's mission is to create strong, sustainable, inclusive communities and quality affordable homes for all.
HUD is working to strengthen the housing market to bolster the economy and protect consumers; meet the need for quality affordable rental homes: utilize housing as a platform for improving quality of life; build inclusive and sustainable communities free from discrimination; and transform the way HUD does business."
Department of Justice and Department of Health and Human Services
- Americans with Disabilities Act (ADA) "Access To Medical Care For Individuals With Mobility Disabilities"
Department of Labor
- Disability Resources
- Office of Disability Employment Policy (ODEP)
■Benefits;
■Civil Rights;
■Community Life;
■Education;
■Employment;
■Emergency Preparedness;
■Health;
■Housing;
■Technology;
■Transportation.
About ODEP
"The Office of Disability Employment Policy (ODEP) is the only non-regulatory federal agency that promotes policies and coordinates with employers and all levels of government to increase workplace success for people with disabilities.
ODEP was authorized by Congress in the Department of Labor's FY 2001 appropriation. Recognizing the need for a national policy to ensure that people with disabilities are fully integrated into the 21st Century workforce, the Secretary of Labor delegated authority and assigned responsibility to the Assistant Secretary for Disability Employment Policy. ODEP is a sub-cabinet level policy agency in the Department of Labor."
Cerebral Palsy
- Cerebral Palsy.org "Our Mission: We strive, everyday, to be the ultimate resource for everything Cerebral Palsy. We provide information, resources, support and unlimited inspiration to all those touched by Cerebral Palsy, and other neurological conditions."
- Cerebral Palsy Group (information sent by Ms. Alison Sanchez) "Cerebral Palsy Group is an online resource for anyone who has been affected by cerebral palsy, birth injuries, or brain injuries." "Cerebral Palsy and Special Education Overview: Special education is individualized education focused on helping children with special needs learn. The focus on understanding the needs of individuals and tailoring education plans to them is crucial for students with cerebral palsy, as the intellectual abilities of individuals with this condition can vary significantly. Some children may be unaffected intellectually but face physical difficulties which impact their time in the classrooms, while others will have mild or significant intellectual impairment. Access to quality education influences a child’s economic future, social and emotional development, and identity. Since special education recognizes individual differences and accommodates them, it is very important for helping children with cerebral palsy to achieve their potential in all these areas. Options for Educating: There are a number of options for parents and caregivers to choose from when they are deciding how to best go about the education of a child who has CP. ■Public Schools ■Private Schools ■Homeschooling ■Tutoring"
- Cerebral Palsy Guidance "Cerebral Palsy Guidance is an advocacy website for parents of children with Cerebral Palsy. It's dedicated to providing the most accurate and reliable health information as it relates to the complex condition of Cerebral Palsy. From information on cerebral palsy symptoms to financial assistance to daily living articles, CerebralPalsyGuidance.com covers all aspects of cerebral palsy. And all of the information is thoroughly researched and cited."
- Cerebral Palsy Guide "Helping children with cerebral palsy According to the CDC, about 1 in 6 children between ages 3 to 17 will have one or more developmental disabilities. Cerebral palsy is a developmental motor disability that affects movement and posture. It can be caused by abnormal brain development or damage to the developing brain. Cerebral Palsy Guide is a national support organization dedicated to educating individuals and their families about cerebral palsy and other developmental disabilities. We strive to provide answers and guidance to ensure that families receive the assistance they need to help improve their overall quality of life."
- Miller Coulson Academy of Clinical Excellence, Johns Hopkins Medicine Paulo Selber - Assistant Professor Orthopaedics in Neuromuscular Disorders at Columbia University Irving Medical Center Cerebral Palsy: "Shock, Grief, and Arrival" "The 4 phases of parental grief in the context of children with limited abilities In the last decade, it has become clear to me that parents/caregivers of children with disabilities demonstrate consistent appropriate emotional patterns. It begins when a child is born with neurological disorder or when a diagnosis is made and the patterns evolve as the parents become more familiar with cerebral palsies and their children's abilities. I call this emotional process the 4 phases of parental grief in the context of children with limited abilities. The phases resemble Drs. Elisabeth Kübler-Ross' & David Kessler's stages of grief, but not completely."
Educator Labs | Cultivating. Connecting. Curating
- EducatorLabs.org "Find out what drives our passion to conserve the educational web & connect educators with exceptional resources."
- National Center for Learning Disabilities Assistive Technology for Students with Disabilities
- The Council for Disability Rights Advancing rights and enhancing lives of people with disabilities.
Elder Impact
- ElderImpact.org | Age is just a number. Marie Villeza
- ElderImpact.org "All too often, aging means doing less – from the things seniors "used" to do through new developments that must be "beyond their time" – but we don’t believe in that. We’re dedicated to identifying resources to keep seniors healthy, connected, and up on today’s news and developments."
- A Family's Guide to Caring for Aging Parents / LL Medico (information sent by Ms. Divine Cooper - Center for Advocacy for the Rights and Interests of the Elderly - CARIE) "Even if you want to, the decision to care for an elderly parent at home may simply not be for everyone. Factors such as having multiple jobs, difficult family dynamics, and the lack of home safety measures can not only make the task more difficult to manage but can also be counterproductive to an aging parent's health. However, if the option is safe for everyone involved, keeping your beloved parent at home can be a rewarding and lesson-filled experience. If you are up to the task, knowing beforehand what to expect and how to prepare for them can help you handle each challenge with grace. This guide takes you through the essential things you need to take into account when considering in-home care so you can help your beloved lead full, supported lives when they need it the most."
- Activities for Seniors With Alzheimer's or Dementia / Potomac Beads (information sent by Ms. Rebecca Barnes) "Alzheimer's disease is one of the brain disorders that affect human beings as they advance in age. This brain disorder is mainly diagnosed in persons over 60 years of age. Depending on many other factors, Alzheimer’s can present its symptoms early, making it hard for the patient to recognize they have a problem, or it may come later in one's life. It mainly affects the brain cells, making seniors forget information easily and progressively deteriorate to advanced levels that make a senior's day-to-day activities impossible to undertake. If left untreated, Alzheimer's disease can deteriorate, leading to severe cases of memory loss and reduced cognitive abilities which can have a significant impact on the quality of life of an individual. Dementia is also a brain disorder affecting over 50 million people worldwide, according to the latest report from the World Health Organization. Dementia is a combination of numerous symptoms of brain disorder manifesting as severe loss of memory, inability to have normal social interactions, and having speech problems. Just like Alzheimer’s disease, this disease affects people over the age of 60 years. Alzheimer’s disease is one of the leading causes of Dementia. ■Psychotherapy in Alzheimer's or Dementia Treatment ■How Crafting Helps Seniors with Alzheimer's or Dementia ■Crucial Things to Remember Before Implementing Activities ■Essential Crafting Activities for Seniors with Alzheimer's or Dementia"
- American Academy of Orthopaedic Surgeons (AAOS): Guidelines for Preventing Fall "Falls can happen anytime and anywhere to people of any age. However, as people get older, the number of falls and the severity of injury resulting from falls increases. According to the Centers for Disease Control and Prevention (CDC), falls are the leading cause of fatal and nonfatal injuries in people age 65 and older. Common injuries due to falls are head injuries, shoulder and forearm fractures, spine fractures, pelvic fractures, and hip fractures."
- Alzheimer's Association "The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research. We provide care and support to those affected The Alzheimer’s Association works on a global, national and local level to provide care and support for all those affected by Alzheimer's and other dementias. We are here to help. We accelerate research and create a path for global process As the largest nonprofit funder of Alzheimer's research, the Association is committed to accelerating the global progress of new treatments, preventions and ultimately, a cure. We advocate The Association is the leading voice for Alzheimer's disease advocacy, fighting for critical Alzheimer's research, prevention and care initiatives at the state and federal level. We diligently work to make Alzheimer’s a national priority. Our history The Alzheimer's Association was founded in 1980 by a group of family caregivers and individuals interested in research. Jerome H. Stone was our founding president. Today, the Association reaches millions of people affected by Alzheimer's across the globe through our headquarters in Chicago, a public policy office in Washington, D.C., and a presence in communities across the country. We are the leading voluntary health organization in Alzheimer's care, support and research. Together, we can change the future of Alzheimer's. Donate today."
- Alzheimer's and Dementia Patients / Rosenfeld Injury Lawyers LLC (information sent by Ms. Claudia Moreau) "Caring for Alzheimer's and Dementia Patients Dementia is a type of syndrome, or group of symptoms, that affects a person's mental functions and abilities, such as their ability to make decisions, remember, and think clearly. Some form of brain cell damage is typically the cause, however, there are also other factors that contribute to one's risk, such as genetics. It can impact individuals to such a degree that it hinders their ability to live independently. Over time, dementia can become so severe that one depends entirely on the help of their caregivers. It is most common with individuals who are over the age of 65, and one's risk of developing it increases with age. According to estimates made by the Aging, Demographics, and Memory Study (ADAMS), as much as 14 percent of individuals living in the United States who are 71 years old or older have dementia. Unfortunately, the exact number of people who have some form of the syndrome is unknown, as it often goes undiagnosed. It is not, however, a consequence of age nor is it something that everyone develops. In terms of gender, 11 percent of men and 16 percent of women over the age of 71 have Alzheimer's disease, which is the most common type of dementia, or one of the other dementias."
- AgingCare "We believe passionately that AgingCare.com is your community. We're your partner in caregiving—and as such, you've made us the go-to destination for family caregivers. AgingCare.com is where caregivers discover that they are not alone, how to survive, and how to provide the care their loved one needs."
- Brookline Community Aging Network - BrooklineCAN (information sent by Ms. Elise Leonard) "BrooklineCAN is an all-volunteer organization that focuses on Brookline as a great place to live. It provides information for older residents that helps them remain engaged in the life of the community, and advocates to make Brookline an even better place to live for seniors and everyone. It is separate from but works with the Brookline Senior Center, the town's Council on Aging, and Age-friendly Cities Committee."
- Center for Advocacy for the Rights and Interests of the Elderly (CARIE) "CARIE was founded in 1977 by a coalition of groups and individuals, including the Friends’ Committee on Aging, the Lutheran Council on Aging, and the Grey Panthers. Originally conceived as a project of the IMG_5632Public Interest Law Center of Philadelphia (PILCOP), it was funded by the U.S. Department of Health and Human Services, Administration on Aging. In 1979 CARIE incorporated as a 501(c)(3) organization and was initially supported as a VISTA volunteer project. Scope – Statewide Organization – and Beyond CARIE's programs extend to the entire state of Pennsylvania and beyond. CARIE is a leader in providing direct assistance to the elderly, their families, and professionals in the aging field. Through telephone contacts and site visits to Philadelphia-area long term care facilities, the agency assists older people and their caregivers to assess needs, identify service resources, and make the necessary connections to resolve elder care issues."
- Dementia / World Health Organization (WHO) (information sent by Ms. Rebecca Barnes) "Dementia is a syndrome – usually of a chronic or progressive nature – in which there is deterioration in cognitive function (i.e. the ability to process thought) beyond what might be expected from normal ageing. It affects memory, thinking, orientation, comprehension, calculation, learning capacity, language, and judgement. Consciousness is not affected. The impairment in cognitive function is commonly accompanied, and occasionally preceded, by deterioration in emotional control, social behaviour, or motivation. Dementia results from a variety of diseases and injuries that primarily or secondarily affect the brain, such as Alzheimer's disease or stroke. Dementia is one of the major causes of disability and dependency among older people worldwide. It can be overwhelming, not only for the people who have it, but also for their carers and families. There is often a lack of awareness and understanding of dementia, resulting in stigmatization and barriers to diagnosis and care. The impact of dementia on carers, family and society at large can be physical, psychological, social and economic."
- E-bike Safety Tips for Seniors / Fly Rides USA (information sent by Mr. Alvis Graham) "Introduction eBikes are bicycles equipped with an electric motor that may be activated to assist the rider in pedaling. The pedals are installed for those who enjoy biking without a boost from electricity. Electric bikes come with numerous health benefits that the seniors can enjoy ranging from mental health to physical health and the benefits of socializing. Despite the wide range of health benefits, these bikes are not without risks. Without proper precautions, ebikes can be a disaster. The bike riders are advised to have protective gear. Finally, these bikes like any other machinery require regular maintenance and care. Risks in Seniors According to the CDC, elderly cyclists account for about half of all cycling fatalities, showing the significance of taking precautions before taking a bike ride. The popularity of e-bikes, also known as electric bikes or pedelecs, has grown in recent years. Users say they are a convenient, cost-effective, and fun mode of transportation for short distances, but injuries and deaths associated with their use have increased. The people who ride them tend to be older than the average cyclist because an easy bike is often more comfortable on less perfect terrain such as paved roads that many cyclists avoid. As we age, our bodies change in many ways. Our vision may deteriorate and become less keen, and coordination can worsen as well as balance. Reduced cognitive function means that individuals have decreased judgment, making it more important to stay active. Musculoskeletal changes such as sarcopenia (loss of muscle mass), osteopenia (decreasing bone density), or even arthritis increase the risk for falls, leading to fractures and broken bones."
- Safe Stars: Information and Resources for Aging Seniors (information sent by Ms. Sandra Beals) "Safe Stars was established as an online resource for those looking to learn about making the right choices for themselves and for their family. The site, SafeStars.org serves as a central depository of informative materials, guides and tools. Made up of parents, educators, and other volunteers, the Safe Stars team helps research and disseminate helpful information for its community. Through outreach to individuals that includes published materials and media messaging, Safe Stars seeks to engage and educate its visitors."
- Seniors Traveling Solo: Some Great Solutions (information sent by Ms. Melissa McGrath) "Today, more older Americans are traveling solo — and that doesn’t mean they’re looking for a mate. Solo travelers say they love their own company, want to make their own itineraries and prefer to travel at their own pace. Traveling alone also makes it more likely that you'll interact with the locals. We've come up with interesting international choices for solo travelers who want the option to connect with others — or even to be a part of something bigger. They're not beach vacations; they are adventures."
Expertize
- Expertise "Our mission is to revolutionize the way consumers and experts connect. We want to make choosing the right expert simple. We want to empower small businesses to thrive."
Life is full of complex decisions. Expertise helps you navigate those important choices with useful guides written by experts in their fields.
For Consumers:
Make truly informed decisions about your projects and goals with our practical how-to guides written by expert contributors.
For Businesses:
Take your business to the next level with our free small business resources, created by our network of industry experts.
Guide to Attending Music & Sporting Events with a Disability / Groupon, Inc
(information sent by Mr. Daren Felton)- The Definitive Safety Guide to Attending US Music & Sporting Events with a Disability "Having a disability shouldn't stop you from being able to go out and enjoy yourself. All it takes is a little extra preparation. This guide will give you a full understanding of how to book, prepare, and attend a music or sporting event. What's Included 1 ■Booking tickets for an event when you have a disability ■How to make a disabled access booking ■Questions to ask the venue 2 ■Preparing for an event with a disability ■Finding nearby accommodation ■What to bring with you 3 ■Attending an event with a disability ■Attending a music gig or sporting event ■Tips for hosting an event with disabled access ■Accessibility requirements for venues 4 ■Further reading & FAQs"
Guide to Choosing Footwear for People with Arthritis / Lemon Hero Health
(information sent by Ms. Melissa McGrath)- Footwear for the type of activity "Many forms of arthritis usually affect the feet, making it painful and difficult for patients to walk. As you get older, you’re vulnerable to this condition when the cartilage in the joints start to wear. It can also occur due to past injuries and traumas. Arthritis is a blanket term for over 100 diseases; the most common types that affect the feet include osteoarthritis (OA), rheumatoid arthritis (RA), gout, psoriatic arthritis, and post-traumatic arthritis. They lead to several symptoms, including: ■Difficulty in walking ■Joint tenderness, stiffness, swelling, or warmth ■Pain The swelling, stiffness, and pain usually occur due to inflammation. Apart from exercises, using inserts, physical therapy, and pain medication, doctors usually advise patients to use custom-made shoes or orthotics. You can also find the right shoes for you in local stores or online. Basically, choosing the right shoes is important in minimizing the pain. Shoes help to provide a firm grip for the heels, resulting in proper alignment of your bones. Read on to learn how to find the best shoes for arthritis."
Housing Guides: Accessibility, Architecture, Costs/Financing and Preparation for Emergencies
- A Guide for Disabled Homebuyers "This guide is designed to be a tool to assist those fearing their disability may become a factor in making the home buying experience more cumbersome. You will find information on what your rights are, resources to aid you in understanding the procedures involved in acquiring a home, and advice on how to proceed if you feel your rights have been dishonored. Additionally, you will find resources to make the most of the opportunities available to you for purchasing a home, whether your plans are to purchase your first house or to relocate from your current residence to your dream home."
- A Safety Guide for Disabled Pedestrians "At 20 percent of the U.S. population, people with disabilities are the largest minority group. And yet, far too often, they are overlooked and underserved. One area where this is especially true is pedestrian safety.
- Bathroom Modifications for Seniors and People with Disabilities / SanifloDepot (information sent by Ms. Aubrey Davis)
- Best Home Security Systems for the Elderly / SafeHome.org (information sent by Ms. Emma Mills - student at Walden University)
- Caretakers' Guide to Moving Seniors Into a Facility / Closetbox "According to the U.S. Census Bureau, the senior population is expected to grow substantially in the coming years, reaching a projected 83.7 million U.S. adults aged 65 and older by 2050. That's nearly double the estimated senior population in 2012: 43.1 million. Many seniors opt to move for a variety of reasons as they grow older, such as downsizing, moving to a retirement community or independent living community for increased socialization, or moving to an assisted living community for those who require assistance with activities of daily living. After the decision to move to a senior living community comes the difficult and painstaking process of downsizing belongings, packing, and making the move. Following is a resource guide created for seniors' caretakers designed to provide moving advice that touches on the unique needs of seniors and their caregivers when moving to a senior living community."
- Guide to home safety for the disabled / SafeHome.org (information sent by Ms. Emma Mills - student at Walden University)
- Guide to Moving for the Disabled / Closetbox "According the Centers for Disease Control, in the U.S., 47.5 million adults report having a disability. If you have a disability and are planning to join the millions of Americans who move each year, you may benefit from moving advice that addresses your specific needs Following is a resource guide created for people with disabilities and designed to provide moving advice that touches on their unique needs when changing residences. ■Pre-Move Checklist ■Packing Tips ■What to Do on Moving Day ■For College Students – Tips For Getting Settled In Your New Space ■Find Local Assistance."
- Home Safety for People with Disabilities - The American National Red Cross "Emergencies can happen at a moment's notice. Mobility problems and hearing, learning, or seeing disabilities can add complication. It is important to plan ahead so you are better prepared for any urgent situation. Our booklet Preparing for Disaster for People with Disabilities and other Special Needs gives tips on getting informed, making a plan, assembling a kit, and keeping your plans up to date.
- Parent's Guide for Toilet Training Special Needs Kids (information sent by Ms. Elise Leonard) "Parenting: it's one of the hardest jobs out there. When it comes to raising kids with special needs, this job becomes even more challenging just as it becomes that much more crucial as well. Nowhere is this more obvious when it comes to toilet training kids; any child can face challenges with toilet training, but kids with special needs are especially poised to face difficulties that other children might not.
- Personal Finance Guide for People with Disabilities "Table of Contents ■Overview ■What to Consider When Creating a Budget Checklist ■Ways to Save ■Set Financial Goals ■Additional Resources The 2004 study, "Disabled People's Costs of Living", found that disabled people have higher expenses in almost every aspect of life—from food to medical care to utilities—and have additional costs due to their disabilities. And yet, the U.S. Census Bureau found that adults age 21 – 64 with disabilities made almost $800 less each month than those with no disability."
Though the Americans with Disabilities Act established requirements for "Curb Ramps and Pedestrian Crossings", the measures are not enough to fully protect disabled pedestrians from the dangers they can encounter on the nation's streets and roadways."
"Considerations and Contingencies
Around 80 percent of falls occur in the bathroom, according to data from the National Institute of Aging (NIA). The bathroom is considered to be one of the most hazardous locations for persons with disabilities or limited mobility. Adding in safety features is essential to make the space safer for them.
Some of the most common problems of living in a non-adapted home is the lack of accessibility to certain places and lack of freedom to move freely and easily within one’s living space. In addition to that, people with different disabilities, like impaired vision or hearing, have their own set of requirements for a safe home.
Common Problems
Some of the major risk factors in the bathroom are the following:
■Lack of proper lighting ■Lack of space ■Wet slippery surfaces ■Getting into the tub ■Hot exposed pipes ■Hard-to-reach areas ■Non-adapted toilet
When making the bathroom safe for older people or persons with disabilities, one should address the problems areas listed above."
"The best home security systems for seniors are those that are easy to install and designed to provide a fast, accurate way of getting help when it is needed. They can double as a way to get help if someone falls or help seniors to know their home is locked up tight. The best systems are designed to be easy to install and very reliable.
Seniors will also appreciate having a system designed with ample customer service. Knowing someone is on the other line and can answer questions is very important. And, even as unmonitored home security systems, they work well to keep those who are elderly safe and informed. At the same time, they tend to be a very affordable option overall. For seniors who want to live at home longer, it is important to choose a system with a proven track record, low-cost entrance fees, and an overall quality design. It needs to be easy to install but also easy to use. The best systems pack a lot of protection into a simple system to use."
"The AARP points out that 53 million U.S. adults, or more than one in every five, provide care to a child or adult with special needs. Caregivers’ challenges in 2020 include handling their own mental and physical health, making financial ends meet, coordinating care, and caring for multiple people with disabilities.
Like most people, you want a safe environment for your family members. It's a foundational desire. But when someone in the family needs help to perform basic tasks such as feeding themselves and bathing, you must deal with a host of new challenges.
Sound familiar? If so, you're in the right place. Our experts created this home safety guide for people with disabilities, their family members, and caregivers. Before we dig in, here's some advice from advocates in the field of caretaking."
These tips provide people with disabilities and their caregivers with guidance in managing communications, equipment, pets and home hazards. The materials were co-authored by the American Red Cross and Department of Homeland Security and FEMA."
Special needs kids can face any number of challenges when it comes to toilet training. Children with special physical needs will encounter certain difficulties, just as other children with special developmental, behavioral, or emotional needs respectively. It often falls to parents of special needs kids to spearhead toilet training in a way that therapists cannot; because of the private nature of toilet training, and the importance of ensuring a child is both physically and emotionally ready for toilet training, the role parents play in this process is invaluable."
Fire Safety Guides
- Fire Safety & Disabilities Guide "According to FEMA, each year approximately 17,500 people are injured and 3,400 die because of fire. There are dangers associated with fire for everyone, but people with disabilities face unique challenges in these emergencies. As FEMA notes, people with disabilities may have more difficulty escaping during a fire. In addition, some disabilities may prevent them from taking actions ahead of time without the help of a caregiver, friend or relative."
- Fire Safety - US Insurance Agents (information sent by Reese and Keri Evans) Home Fire Safety Guides and Educational Resources:
- Fire Safety Tips for Homeowners - Lohser Group (information sent by Molly and Ava Parker) ■Carbon Monoxide Safety;
"Although home fires have decreased drastically over the last thirty-five years, they still happen frequently. In fact, over 369,000 home fires occur in the United States each year, resulting in $6.8 billion worth of damage. Many of these fires are preventable, but some are not. Learn about the steps you can take to keep your family safe in the event of a fire, because when it comes to home fires, preparation can mean the difference in life and death."
■Cooking Safely;
■Home Fire Escape Plans;
■Internet Resources;
■Miscellaneous Fire Safety Tips;
■Preparing and Preventing a Home Fire;
■Smoke Alarms.
Mesothelioma (Doença do Amianto: Mesotelioma maligno)
- Asbestos.com: Public Outreach Department for the Mesothelioma Center
"Whats is mesothelioma?
Malignant mesothelioma is a rare, asbestos-related cancer that forms on the thin protective tissues that cover the lungs and abdomen. A combined approach to treatment is helping people improve their survival and ease symptoms.
Mesothelioma Causes:
Contact with asbestos is the leading cause of mesothelioma cancer, as nearly every patient diagnosed with this aggressive cancer came in contact with it at some point. Mesothelioma caused by asbestos exposure commonly occurs occupationally, environmentally or as a result of secondhand exposure.
Senior Health Resources: Due to the long latency period of mesothelioma, approximately 20-50 years, about 80% of those who are diagnosed with this terrible disease are seniors.
Our organization works with these individuals and their families to help them find local doctors, caregivers, treatment centers and support groups."
- Mesothelioma.net "Treatment information, Learn from survivors, Veterans benefits & claims, Find out about the millions in asbestos trust funds."
Physical Therapy for Mesothelioma Patients: (full text)
"Physical therapists can help mitigate many of the challenges of living with mesothelioma and its treatments. They can help in a variety of ways from increasing mobility to decreasing fatigue and making the side effects of treatment less severe. They can help in a variety of ways from increasing mobility to decreasing fatigue and making the side effects of treatment less severe. Most often, physical therapists helping mesothelioma patients will work with the medical team and the oncologist to provide the best care..."
"Note: The information provided by Mesothelioma.net is not a substitute for professional medical advice, diagnosis or treatment."
"Mesothelioma is a rare cancer and very few treat it. We specialize in connecting patients with doctors and treatment options that are best suited for them. Our services and resources are 100% free to patients and family members."
- Mesothelioma Guide "Mesothelioma Guide is your trusted ally in the fight against asbestos-related cancer. We provide up-to-date information about living with mesothelioma, top doctors, treatment options, and more. Types of Malignant Mesothelioma: Malignant mesothelioma is a rare cancer caused by inhaling or ingesting asbestos fibers. This cancer occurs in the protective lining of the lungs, abdomen, heart, or other organs. It often takes mesothelioma 20-50 years to develop after asbestos exposure. There are several treatment options for mesothelioma, including chemotherapy, radiation, and surgery. Many patients turn to clinical trials that are exploring promising new treatments like immunotherapy. Treatment options vary based on a patient’s specific diagnosis."
- Mesothelioma Hope "We Provide Resources To Help Mesothelioma Victims Find Hope. Our site strives to give the most accurate and helpful directions for addressing mesothelioma symptoms, treatments, and resources. Mesothelioma Hope is dedicated to getting patients and their families the help they need. Our Purpose Is To Help You: ■Understand your diagnosis and available treatment options ■Connect with mesothelioma medical specialists near you ■Learn about available financial and health care benefits Mesothelioma Hope was founded by a group of medical and legal advocates whose goal was to provide a comprehensive database for people diagnosed with mesothelioma. Today, Mesothelioma Hope works to assist those directly affected and help families, siblings, and other caregivers provide support. Treatment - Free 2022 Mesothelioma Guide There are several treatment options available for malignant mesothelioma. These options include surgery, chemotherapy, and radiation. All mesothelioma treatment options aim to extend your lifespan, reduce your symptoms, and make you more comfortable. Mesothelioma treatment is prescribed and performed by specialized doctors at cancer centers around the country."
"Helping U.S. Veterans With Mesothelioma Since 2015. Due to the widespread use of asbestos in the military between the 1930s and the 1980s, veterans account for 33% of all malignant mesothelioma diagnoses. There are thousands of veterans suffering from this dangerous disease, and since 2015, the Mesothelioma Veterans Center has been here to help."
- Mesothelioma Veterans Center "Serving Veterans Affected by Mesothelioma The Mesothelioma Veterans Center was founded to provide information about VA benefits, medical treatment, and financial compensation to veterans with mesothelioma. If you're been diagnosed with mesothelioma or an asbestos-related disease, we can help you and your family every step of the way. How We Help Veterans With Mesothelioma Since the Mesothelioma Veterans Center was established, thousands have turned to our team to get information about mesothelioma and how to take action after a diagnosis. We can also help you plan your treatments for mesothelioma. This includes helping you find the best cancer treatment centers and join ongoing clinical trials."
- Questions about Mesothelioma? Ask our experimental AI chatbot - The Lanier Law Firm (information sent by Mr. Jacob Bryant) "We have created a revolutionary tool using state-of-the-art artificial intelligence technology that can instantaneously answer questions you have about asbestos exposure and mesothelioma, powered by all of our curated content. Our AI can answer specifics about mesothelioma cancer, what treatments are available, military asbestos exposure, information about mesothelioma lawsuits and claims, or one of our attorneys, feel free to ask."
National Council on Disability (NCD)
- NCD: An independent federal agency to disability policy leadership since 1978 "The National Council on Disability (NCD) is an independent federal agency that provides advice and recommendations to the President, Congress, and executive branch agencies. NCD does not provide direct legal or advocacy services to people with disabilities. However, below is a list of resources to assist individual inquiries seeking such services which are most likely to be found at the city or state level. Please also refer to NCD's Frequently Asked Questions for answers to commonly asked questions."
News
- A New Savings Plan for the Disabled The Wall Street Journal
By Anne Tergesen
January 11, 2015
A new type of savings vehicle for the first time offers the disabled and their families the benefits of tax-free growth.
Physical Therapy Assistant Schools Guide (PTA)
- Managing Editor: Lindsay Hall
- PTA: the top resource for finding schools with physical therapy assistant programs "We have researched the web to bring you the best assessment, information, and selection of schools as possible to help you make your decision. On our website, you will find detailed information on accredited PTA schools and programs, schools listed by state, salary and career information to help you decide if this is the right career for you, and search and comparison tools to help you find the right program for you."
PublicHealthCorps
-
"Nearly 1 in 5 people - 56.7 million - have a disability in the U.S. (1).
Those with disabilities are more likely than those without disabilities to report having poorer overall health, less access to adequate healthcare and more engagement in risky behaviors such as smoking and physical inactivity (2*)".
(*)deleted web page
CDC: Disability and Health
Patricia Sarmiento
PublicHealthCorps
- Public Health Corps | Putting the Public Back in Public Health: info@publichealthcorps.org
- PublicHealthCorps:
"Public health is only effective if the public can actually access and discern what information is reliable. But given how much information and how many 'sources' are out there, how can you decide who's the authority?
That's where we come in.
Our goal is to provide a hub of reputable and useful public information on health topics. We apply library science and technical know-how to the public health sector to identify quality authorities as well as to track news and developments, and then we organize it into handy references made available on this site."
PublicHealthCorps: children
- Beneficial Activities for Kids with Special Needs
- College Assistance Guide for People with Attention Deficit Hyperactivity Disorder (ADHD)
- Homeschooling and Special Needs Children
- Obesity and Children with Special Needs: pdf download file (3.4MB)
- Routines and Children with Disabilities
- Teaching Students with Special Needs
- The Ultimate Guide to Flying with Autistic Children
Reading Education Assistance Dogs: R.E.A.D.
- R.E.A.D. "The Reading Education Assistance Dogs (R.E.A.D.) program improves children's reading and communication skills by employing a powerful method: reading to an animal. But not just any animal. R.E.A.D. companions are registered therapy animals who volunteer with their owner/handlers as a team, going to schools, libraries and many other settings as reading companions for children.
R.E.A.D. is the first and foremost program that utilizes therapy animals to help kids improve their reading and communication skills and also teaches them to love books and reading. It's been growing around the world since November of 1999 when ITA launched it here in Salt Lake City. More than 3,500 therapy teams have trained and registered with the program and are going strong!
Today, thousands of registered R.E.A.D. teams work throughout the United States, Canada, United Kingdom, Italy, Finland, France, Sweden, South Africa, Slovenia, Spain, Netherlands, Norway and beyond. R.E.A.D. is one of those ideas that, in the words of Bill Moyers, "pierces the mundane to arrive at the marvelous."
Social Security Administration
- Extra Help with Medicare Prescription Drug Plan Costs "What help can I receive?
Medicare beneficiaries can qualify for Extra Help with their Medicare prescription drug plan costs. The Extra Help is estimated to be worth about $4,000 per year. To qualify for the Extra Help, a person must be receiving Medicare, have limited resources and income, and reside in one of the 50 States or the District of Columbia.
■Information on the Extra Help program;
■See if you qualify for Extra Help and apply;
■Extra Help forms and publications;
■Extra Help information for caregivers and organizations;
■Extra Help information in other languages;
■Information on the review of your eligibility;
■The official U.S. Government site for people with Medicare;
■Understanding Medicare enrollment periods."
Links (UK)
Public Health, Rehabilitation, Citizenship, Education:
Saúde Pública, Reabilitação, Cidadania, Educação:
Blood Pressure
- Blood Pressure Association "We are the only UK charity dedicated to lowering high blood pressure. Our aim is to lower the nation's blood pressure to prevent death and disability from stroke and heart disease. Our services and campaigns ■Our helpline Our helpline offers free, informative and impartial information and support from our specialist hypertension nurse. Whether your enquiry is about yourself or someone you care about, and whatever your question, we're here to help you understand and look after your blood pressure. ■Our resources It can be overwhelming to find out you have high blood pressure, and we're here to support you with our booklets, factsheets, newsletters and magazines, written by our team of health professionals and health writers. ■Our campaigns We've reached over 1.5 million people with a free blood pressure check with our annual Know Your Numbers! Week campaign, the nation's biggest blood pressure-testing event."
Disability awareness and planning for accessibility / Function Central
(information sent by Mr. Daren Felton)- Health and Safety Requirements for Event Planning "Most event planners will want whatever occasion they plan to be inclusive. But there’s also important legislation which businesses have to comply with. The UK Equality Act 2010 requires all events – including things like conferences and exhibitions – to be accessible and inclusive. As an organisation that puts on an event, you have to take reasonable steps to find out whether someone is disabled. The UK Equality Act 2010 defines disability as having: "A broad meaning; it is defined as a physical or mental impairment that has a substantial and long-term adverse effect on the ability to carry out normal day-to-day activities." You want people to attend and enjoy themselves. For people with a disability, it can be difficult to find accessible events. Be sure to share your efforts in making yours an accessible one for a wider audience."
Event Accessibility Guide / Eventbrite
(information sent by Mr. Daren Felton) "An essential guide for event managers and venues on planning events, meetings, conferences, exhibitions & other activities in the UK that are fully inclusive and accessible. A legal requirement: UK equality act 2010 The UK Equality Act 2010 defines disability as having a “broad meaning; it is defined as a physical or mental impairment that has a substantial and long-term adverse effect on the ability to carry out normal day-to-day activities”. Substantial means more than minor or trivial. Impairment covers, for example, long-term medical conditions such as asthma and diabetes and fluctuating or progressive conditions such as rheumatoid arthritis. A Mental impairment includes mental health conditions, learning difficulties such as dyslexia and learning disabilities such as autism, etc."Flood Safety Guides
(information sent by Mr. Lucas Scott)- Essential Guide To Flood Planning & Preparation - Polygon Group (UK) ■1. Introduction To Flooding In The UK; ■2. Flood Planning & Preparation; ■3. Flood Safety Manual; ■4. After Flood Repairs & Restorations.
- How to minimise flood damage in your home - U K Insurance Limited "Natural floods are becoming increasingly common. Our guide will help you be ready, react and recover should a flood hit your area. When flood strikes, it can wreak havoc in two ways. First is the immediate damage from the water itself; the second is the long-lasting aftermath. During the UK's wettest month on record (December 2015), the Environment Secretary at the time - Liz Truss - estimated that around 16,000 homes were flooded, costing millions in recovery and repairs. However, she also claimed that more than 20,000 homes were protected due to flood defences that had been put into place. It just goes to show that, although you can't prevent a flood from happening, you can help minimise the damage it causes to your home."
SuperCares Ltd.: Connecting people who care
(information sent by Mr. Daren Felton)- About us "SuperCarers is an introductory service which helps connect individuals and organisations with trusted, experienced and fully vetted carers in their area. We believe that - in most circumstances - the best placed people to coordinate high quality, personalised care are the families and care professionals themselves. Unlike an agency, which directs and manages the delivery of care, we focus on identifying excellent carers, making personalised matches, and giving you the tools to coordinate care directly with your carer. Carers on our platform are available for day and night care in London and Greater London, as well as live-in care throughout mainland UK."
- Elderly Care: A Guide for Families New to Caring "If you're newly responsible for finding elderly care for a family member or friend, it can be difficult to know where to start. This actionable starter guide aims to provide you with an overview of elderly care, from what’s available to the more practical financial and legal issues. It covers: ■Different types of care ■Financing care ■Care assessments ■Legal considerations ■Home modifications ■Assistive technologies"
- The Essential Guide to Travelling with a Medical Condition Chapter 1: Introduction to Travelling with a Medical Condition Getting travel insurance with a medical condition. What is included in medical condition travel insurance? Tips to help you travel safely with a medical condition. Chapter 2: Travelling Abroad with a Disability Planning & packing for your holiday. Transport & accommodation when abroad. Day-to-day activities & emergency help. Most accommodating cities for disabled travellers. Chapter 3: Tips for Travelling with a Medical Condition Disclosing your medical condition. Vaccinations & visas for travelling abroad. Taking medical supplies through customs. Chapter 4: Guide to Travelling with Certain Medical Conditions Travelling with cancer, a heart condition, with dementia. Chapter 5: Useful Links & Further Information
- Introduction to insulation for the elderly / Building Materials Nationwide Ltd "When winter rolls around it brings inevitable illnesses such as coughs and colds. However, for many people and especially the elderly, winter can cause a number of more serious health complaints. Among others, serious medical problems during the colder months can include heart attacks, strokes, breathing problems and hyperthermia. For those over 75 or with pre-existing medical issues, winter can be a fatal time of the year. Why is it important to keep warm in winter? The cold can have a significant effect on your health and as such, keeping warm during the winter months is vital. To fight off illness, your best chance is to keep warm in the home. Of course, for many homeowners and tenants this can pose a problem in itself. Without sufficient insulation, heat can easily be lost through the walls, roof, windows, doors and even floor. As such, it can cost a fortune to heat the home and many people choose not to increase the temperature through fear of expensive energy bills. However, it's important to take the temperature of your home seriously especially in winter. You'll be more susceptible to flu, heart attacks, strokes, pneumonia and depression if: ■You're aged 65 or over ■You're receiving a low income ■You suffer from a long-term health problem ■You are disabled. Staggeringly, an estimated 23,200 deaths occurred in England and Wales in the 2018-19 winter because of cold weather and, in 2017, 10.9% of households (approximately 2.53 million) were stuck in fuel poverty in England alone. Fuel poverty affects homes where energy bills are above 10% of annual income. If you are in fuel poverty and struggling to pay bills, it’s past time you took action."